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At age 7, I was diagnosed with Lupus

I’m a 34-year-old, single mother of an 11-year-old. At age 7, I was diagnosed with Lupus. Over the years, I’ve been paralyzed, blind, joint pain, stomach issues, among other health issues.

In 2015, I was diagnosed with a rare kidney disease, known as “Immunotactoid”. There is no cure for this disease. In January 2018, my kidneys were no longer able to filter waste, so I began haemodialysis. During all my turmoil, I managed to receive two degrees. I have a Master’s in Counselling. I started a 2nd Master’s in Forensic Psychology, but due to my health, I dropped out of that program.

In 2016, I was hospitalized twice. In 2017, I was hospitalized 5 times; I also received 9 blood transfusions in 2017. I’m originally from Alabama, but in 2012, I took a leap of faith and moved, my son and I, to Virginia.

May 31st will be 6 years I’ve been a “Virginian”. Throughout my health issues, my son has literally saw me deal with some rough health crisis. In January 2018, he had to call 911, because I kept passing out. I had the flu and double pneumonia…and didn’t even know. I just remember being really sick! When I got to the ER, my oxygen level fluctuated between 25-58. I was hospitalized for 3 days.

In April 2018, I was hospitalized for pulmonary embolism. My dad died in 1998, with the same diagnosis. I still work full-time, and take care of my son, with no help. I’ve never been out of the country, neither has my son. I’d love to take him someone exotic. He’s also talking about visiting Europe. I want to be able to take him to Europe, Disney World, a cruise… somewhere, because he truly deserves it.

Sometimes, I feel like I’ve stripped him of his childhood, due to everything he does for me. I don’t think an 11-year-old should have to be a caregiver at that age. Thanks for taking the time to read my story. God Bless!

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